Wednesday, April 30, 2008
Jonathan
Posted by Christy at 4:38 PM 0 comments
Labels: Jonathan
Tuesday, April 29, 2008
The Remodel Begins
Tom, our general contractor, came by today with Mark, his foreman. For anyone who hasn't heard we are adding a whole other story to the house. We tried selling last year but we timed it bad and really we never found a house we liked. So, this year the solution is to add on and get the room we need. That way it's exactly how we want it. So far it's been a lengthy process, I think we called them in February and after some delay the plans were finally submitted three weeks ago for the permits. Tom told me today that those should be done by end of this week. He walked into the garage and said something to the effect of "I thought this would be emptied by now." We have a room in there that a previous owner had built himself and for the project to continue it needs to be ripped out. He had told us, yes, to empty the garage. Nothing about having the room torn down. We were waiting for specific instructions. Then proceeds to tell me they should be here next week to start removing the roof. So, Rob will be tearing apart our computer room every night until it's done. I have decided I will take pictures of the whole project to document the "fun"! Phase one has started. The computer is now back in my living room, where I really don't like to have it.
Seth has found a new play place under the computer. And yes, that's a fake hotdog in his mouth.
Posted by Christy at 9:26 PM 0 comments
Elizabeth
Elizabeth is a bright little girl with red hair that loves books and doing crafty little things. She adores her little brother, Seth. Elizabeth loves to play outside with her older brothers. Some days she very much enjoys aggravating her older brothers :) She has taught herself how to read and does a fantastic job at it and like her brothers has a way with numbers. Elizabeth loves to sing and attends a weekly singing group. This time around they are learning folk songs.
For anyone who doesn't know, Elizabeth also has Cystic Fibrosis. It's a genetic disease that's throws off the body's salt and water balance which causes the body's normal mucus production to go off kilter. This in turn causes a very thick sticky mucus that wrecks havoc on different parts of the body. The main concern is the mucus that develops in the lungs. Once it's in there it's in there AND it harbors bacteria. These bacteria cause flare ups which in turn cause more mucus which in turn damages the little air sacs in the lungs. It's not fun and there is no way to reverse the damage once done. CF exhibits itself in hundreds of different ways though and our daughter is extremely blessed in that she has NO lung problems. Instead she suffers from a blocked pancreas which means she can't produce the enzymes necessary to digest fats and protiens. This is easily fixed with enzymes she can take by mouth. Another recent complication manifested in her sinuses. Last year she had two sinus surgeris within months of each other. The doctor had to go in and clear out all the polyps that had completely clogged up her sinuses. I mean there were NO airpockets. The polyps had actually started causing the bridge of her nose to flatten out because there were so many trying to cram their way in there. The first surgery went really well and for the first time in a long time Elizabeth could breath through her nose. It was then that I realized she probably couldn't smell either. All those little stops by our roses for the past couple years where I told the kids to smell them and she probably couldn't. I just wanted to cry over that. She ate like nothing else after that surgery too. I realized also that she probably wasn't tasting the food right, no wonder we had spent so much time practically forcing her to eat. Sadly at her two week appointment the polyps were coming back. Had to start up a round of oral steriods and back on the nasal ones. Two months later it was if she hadn't had the surgery, the polyps were so bad. So we scheduled another. We had been warned, Elizabeth could be having sinus surgeris every 4-6 mos for the next couple of years but we were hoping. This last surgery took place in December and it's now almost May. The polyps started coming back but they weren't in her nose yet so we are just waiting but at least this time they have taken longer to form. We will be taking her in soon to check on them and see where they are at. The polyps form, of course, because of the mucus in her sinuses. It's so thick and sticky it aggravates the lining which causes the polyps to form.
Anyway, life for us is actually pretty normal. It could be a lot worse. Elizabeth is truly blessed. She is healthy and happy and some days full of more energy then I can handle :) Not to say I don't worry about her future. Most of the time I just won't let myself think about it. Her CF could take a turn for the worse and she could end up in the hospital for months. Looking farther ahead, she very likely will have a hard time having children if she can at all and that makes me very sad. So, I just don't think about it. Science has made so many advances in the last couple of years that we are very hopeful they find a "cure". In fact, they have just announced a new drug that has made it through phase one of its clinical trial I think and it's proving to actually reverse the affects of CF. We are keeping our fingers crossed.
The walk this year is on May 17th at Oaks Park. I didn't know in time to form a group to raise money but I will be going to help out with stuff like registration and helping along the trail. If anyone else is interested please contact Danielle Kilian dkilian@cff.org , they still need volunteers. Hopefully next year my life isn't so crazy (hahahahahhaha) and I can put a group together for the walk.
Posted by Christy at 9:01 AM 1 comments
Labels: CF, Elizabeth, sinus surgery
Sunday, April 27, 2008
Got Nature?
Posted by Christy at 4:27 PM 0 comments
Labels: family, kids, Nature Park
Friday, April 25, 2008
Future Pianist
Posted by Christy at 8:54 AM 0 comments
Tuesday, April 22, 2008
Enshin Karate
Posted by Christy at 9:22 PM 1 comments
Thursday, April 17, 2008
Being Silly
Just had to post some pictures of the kids being silly together. Elizabeth was chilling on the couch when Seth just made himself comfortable next her and she proceded to read to him. He had fun pointing at the pictures.
Later the boys started this game they play around the TV. They get Seth to follow them around the corner then sneak away from him and come up behind him and startle him. Seth just loves this and laughs and laughs. It's so nice when they are all getting along :)
It's hard to tell but Seth has no idea Nathaniel is behind him and no idea Jonathan is about to jump out from his hiding spot to scare him. He loves this game. Seth is getting faster on his two legs and actually managed to sneak up on Nathaniel and Jonathan at one point which just made everyone laugh :)
Jonathan poking his head around the corner to say "boo!" and Seth screaming with delight :)
Seth prefers to stand on his scooter rather then ride on it :)
Seth loves to play with Elizabeth's fake food. Here he was trying to carry two hot dogs plus their buns so he had to use his mouth.
Tuesday, April 15, 2008
An Animal Visitor
Posted by Christy at 12:20 PM 0 comments
Labels: Animals
Monday, April 14, 2008
Anxious to plant
Posted by Christy at 7:27 PM 0 comments
Sunday, April 13, 2008
Happy Birthday, Julie Hess!!!!
HAPPY BIRTHDAY, JULIE!!!
To celebrate her birthday this year one of my dearest and closest friends, Julie Hess, held a medieval murder mystery dinner at her in-laws home. We all dressed in our medieval finest and had a blast trying to figure out who the murderer was. We were served a four course meal of the best food ever, thanks to her mil Joi Hess. During the dinner someone was "murdered" and then we went about gathering information through bribery, blackmail or whatever means it took. Julie and her husband, Zan, were the Lord and Lady of the manor. Rob was the sherrif and I was Sherilyn, wife of the sheriff. We both were supposed to act pompous and arrogant. That was the hardest part, I couldn't keep from laughing every time I tried. Rob did a pretty good job of getting people to give up some of their money towards taxes, which was really supplementing our income not the king's :)
Sherilyn (Christy) and the Lady Gwendolyn (Julie)
The Sheriff (Rob), Lord Taylor (Zan) and a serf (Zan's dad)-he won best dressed :)
The gang of medieval merrymakers
Sir Rufus (Mark Temperini) the unsuspecting murder victim
Lady Diana (Tonya Gold) the murderess-Who would suspect such a lovely lady? Only three of our group figured it out :)
Posted by Christy at 9:36 AM 1 comments
Labels: Birthdays, friends, Murder Mystery
Friday, April 11, 2008
A child's curiosity
Posted by Christy at 9:47 PM 1 comments
Labels: Seth
Finally! The Sun!
Posted by Christy at 1:55 PM 0 comments
Tuesday, April 8, 2008
Everyone else is doing it!
Well, time for me to start a blog. Why not everyone else is doing it :) I'm not even sure what to say. I'm not a writer, never liked writing. But, as a friend pointed out, time is slipping away too fast. I need to be better about recording what is happening in Beasleyville.
Of course, I just get started and my littlest one starts crying :) Nap time is over! Such is life. Hopefully I'll have pictures up soon and loved ones can then keep up with our children who are growing and developing at an alarming rate!
Ok, off to get my little Seth.
Posted by Christy at 1:44 PM 2 comments